Results from CT

Results from the CT: Stable. Hooray! Tumor has not spread and we’ve been granted another 2 months off, until the next CT scan. David is to call immediately if he experiences any pain before that. I declare that will not happen! But if it does and/or if more chemo is indicated after the next scan there is a trial adding a new drug, it’s in phase III and would be the perfect clinical trial. While that sounds good, I’m leaning towards, let’s not need it.

Some of you joined us at Purple Stride last Sunday. What an event. It was uplifting and emotional and even fun. We are already planning for next year. And we’ll be more aggressive in our fund raising so be warned! And again, thanks to all who contributed. Survival rate has gone up (it was about 6% and now is at 9% for 5 years). If you want to learn more, check out pancan.org.

The main thing I will be exploring is how to get my hair more purple. The spray on purple color and purple glitter did not show up unless the sun was shining on me! I know it was there as my hair was like a helmet with all the spray. Researching coloring my hair is much more enjoyable than researching pancreatic cancer, some days I can do it, others, not so much. Thanks for walking with me on this journey.

The Longest Week Oct 4th

The Longest Week: David got his CT on Monday but we won’t know results until next Monday or next Friday at the latest. We are anxious and hopeful as always. That darn waiting in the hallway!

We have made good use of the chemo holiday. It’s been a real joy and a holiday of a different sort. David still gets tired easier and will fall asleep in the middle of a discussion. I don’t mind that so much anymore but it still gives me a start and scary moment or two. His chemo brain (forgetfulness) is worse than ever. That gets so frustrating. I try to think of him as an Emu and just restate or re-explain or re-answer. I use the Emu analogy from the bird show at the Zoo’s Wild Animal Park (long ago). When the trainer brought out the emu they described his memory such that the emu made 3 new friends every day (He performed 3x a day). We both remember that so use that as our fun reference.

Sunday is the Purple Stride Walk, fundraiser for Pancreatic Cancer. David has a team, Fist Bumpers. We have turned it into a fun weekend event. We will take Mercy (our little motorhome) and stay at the Mission Bay RV Park. That way we won’t have to fight traffic or parking and can invite folks to hang out with us after. We will have some snacks and I have purple plates, purple cups, purple forks and a couple other purple items to maintain the theme. What the heck, along with some purple hairspray and suddenly what could be a very somber event, has been turned into fun and celebration!