Friday, November 23, 2018

Happy Thanksgiving



Yes, it is a happy thanksgiving. David is home, again! We will be joining family for a meal later today. We have a lot to be grateful for, family, friends, David is still with us, etc
Here is a brief recap of our latest events. (maybe not so brief?)
September 19th David went to the ER because he was yellow and in pain. This turned out to be due to blocked bile duct, actually they called it a stricture. Plastic stint was placed via endoscopy on Monday, September 24.
David was feeling pretty good and was able to participate in the Purple Stride walk October 7th. He didn’t walk as far as he had hoped but was able to walk and we enjoyed a couple days in the RV at the nearby RV park.
We then, after labs to confirm the stint was “working”, we packed our bags and flew to Montreal Canada to begin what was expected to be a long cruise including Halloween, birthday celebrations for me and Thanksgiving. Instead we left the ship, at the “suggestion” of the ship doctor, in Tampa and flew back to San Diego. This turned into another ER visit on Halloween, October 31 Wednesday. So our costumes and my spider earrings got this year off as I didn’t think to dress up to go to ER. This visit led to a hospital stay which included replacing the blocked/clogged stint with two stints, in a sort of rush, emergency procedure. 4 days and David is released.
Fast forward to November 19th, David’s blood sugar is dangerously low and, in the afternoon, not wee hours of the morning when it does occasionally go low. I helped David do the usual steps to bring his blood sugar up. It’s not moving up, started at 39 (70 is low) only moved up to 41. A bit of panic sets in and I can tell David is affected by this low sugar. He usually breaks out in a sweat and had already changed his T-shirt. I am watching the T-shirt turn wet. If I weren’t in a panic, it would be rather interesting to watch it happen before my eyes. I call the 24-hour nurse, do her remedies as suggested and it is only moving up to 46. A bit of time has gone by and David has checked his blood sugar 3 or 4 times. The nurse now calmly says, hang up and dial 911. I followed her direction, not quite as calmly!
It seemed like it took forever for the big fire truck to arrive, it’s now dark. It’s always fun to see the big strong, handsome, young men coming and a bit of relief. The ambulance arrived and it never seemed to be a question of if he should go to the hospital, only which hospital. And off he goes.
A couple of neighbors came out and the neighbor next door kindly asked if I wanted him to drive me or follow. His wife was concerned which was very nice. In fact, these neighbors had taken my mom to the hospital many years ago when my dad was given his own ambulance ride. There is something about being in the same neighborhood for almost 40 years.
Was it sepsis again? Was it C-diff (until this was ruled out, everyone had to “gown up” when going into the room, isolation was not fun). Any infection or reaction to the diabetes medication that he’s been taking for years. A result of the weight loss, dehydration, diarrhea or did David just want some more of that hospital food. Many speculations, no diagnosis, 3 days later David is released. My sister went along with me to “bail” him out.
Thanksgiving was a lovely day spent with some family and enjoyed good food and company. Even my 97 year old father in law was able to attend.
Monday is the follow up appointment. I have my own theories. Thanks to everyone who is trudging this path with us. Food and distractions and just knowing you are all there for whatever I/we may need gives me great comfort. Stop and smell the roses and don’t sweat the small stuff (it’s all small stuff).

Monday, November 5, 2018

Home from the Hospital


David, the rebound King! Once again, he was overcome with complications that should have been devasting and deadly, while this was certainly hair raising, it seems to have had a good outcome. The diagnosis of UTI on the ship, which may or may not have been accurate, ultimately, he got sepsis. His biliary stent was plugged and did cause bacteria to enter in his blood. Not to forget that this was all very painful. The stent placed on September 24 was removed and replaced with two side by side biliary stents November 3, 2018. We know these plastic stents must be removed and replaced but usual span is 10-12 weeks.

Here are specifics we learned at the doctor appointment this morning, November 5, 2018.  In case you didn’t think he really wasn’t eating, when we got on the ship, David weighed 150 lbs, down from his 160-average weight, today weight 143!  Sepsis without acute organ dysfunction; cholangitis [fewer than 200,000 cases per year!]. Through this course of antibiotics any sore throat, fever, cold, immediately go to the ER.

That’s about it for the medical side. Now, who wants to come help me (Marilyn) make copies and scans and fill out insurance claims? This tedious job is not for the weak hearted. Besides, along with waiting on David (well, sort of) I am attempting to cook; bake; fuel the car – unknown jobs for me!

Now the bad news. They always do a routine brushing and this time it did not show just scar tissue, the pathologist sees cancer cells, suspicious not certain. This doctor has notified David’s oncologist (“the captain of this team”!) What will happen now is an endoscopy ultra sound which will include biopsy to determine if cancer is there.

Hang in there folks, more will be revealed…

Friday, November 2, 2018

Mr David rallies again

Hooray, for the second time the yellow is gone! David may even be released as early as tomorrow. His first and original stent was the cause of infection. The one stent was replaced with two, side by side, whatever that means. This procedure is usually done at another facility but the doctor came to David yesterday. He completed and immediately went back to the gi/internal facility. That makes me think they were quite concerned with getting the procedure done ASAP.
Still working on eliminate the infection in his blood which is a result of the clogged stent which is, I don't know why.
And how was your week!

Thursday, November 1, 2018

Update, in the hospital

Quick update. David has been admitted to the hospital. He has sepsis and needs the bile duct stent replaced. The stent that should last 4 months and has only been in about 4 weeks. That all may or may not be accurate, but that's what I heard.
Now we pay the waiting game of doctor coming to see him and getting something scheduled.
He is sleeping a lot. Feel free to text him. He has his phone, but doesn't want phone calls in case he is getting some uninterrupted sleep. If you have ever been hospitalized you know how often you get awakened.
Thank you all for caring. By the way this is pancreatic cancer awareness month, spread the word. Wear purple, especially on November 15 th.