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| The Chair |
I’m loving this warm weather in November. David came up with
the idea to take advantage of it and try for a stroll at the bay. That seemed
like a good idea so we (that’s the royal we because you all know it was just
me) loaded up some items and took off. Middle of the day so no traffic to or
from. I got out David’s transport chair and he pushed it for quite a way and
then rode the rest of the way. The sidewalk is sloped and it was a bit more
effort than I had thought to push. I had said we’d walk to the next bathroom
but since I was in charge, turned around before we got that far.
That worked out so well that I suggested we try again today
and thought I’d like to do the shopping mall. It’s outdoors and I could stop
and get an item or two. So again, load up and go. I leave the transport chair
in the back of the car between uses. It is so much lighter than the wheelchair
but the wheelchair does push and “sit” better. From my mother I learned to pack
snacks and drinks. I don’t remember us taking a lot of car trips, mostly to my
grandparents in Cardiff. She always seemed to have just what we needed in
snacks and minor supplies and I’ve carried on that tradition. However, it does
seem we/me spend more time getting ready than at the actual outing; maybe that’s
just what has to be.
These days I have to help David with his shoes and socks. It
is not an easy task. I made the mistake of telling David this story. My mother
saw me attempting to dress one of my dolls and I had her on her head so I could
get the clothing on. My mother informed me that I would not be able to turn my
babies on their heads when I had to dress them. So every time I help David with
dressing, he wants to know if he should stand on his head! Isn’t he the funny
one!
Eating is still a challenge, now in addition to not feeling
like eating and 5 or more days that he absolutely can’t touch or eat anything
cold, added on is mouth sores from the chemo. I think its more like a
tenderness to his mouth and sore throat; topped off with dryness of mouth that
I guess I’d say is uncomfortable. I know it makes him talk funny (but not any
less!). If you’d like a better explanation – ask him. Picking up some possible
remedies was included with our mall walking today.
Scheduled is chemo for November 18th which means
the pump disconnect will fall on the 20th which happens to be my
birthday. Last year David had made reservations for us to go to dinner at a
nice place but he ended up in the hospital. This year, I’ll just be happy if
the only hospital we see is for the pump disconnect. I can always buy myself a
piece of carrot cake, Vons sells single slices of one that I like.
I’ll end with todays suggestion, along with enjoying
moments, get a little exercise. Because David has had to spend so much time
inactive, his legs have lost quite a bit of muscle. You don’t even realize it
and then dang, you wish you had kept up some strength training. That’s why I’m
not gonna complain about pushing David in the transport chair – my own form of
exercise!
Thank you everyone for hanging in there with us. Love and
hugs to all.